Friday, October 18, 2013

Aphasia on Screen: Ram Dass in Fierce Grace

"Aphasia is a loss of language, not a loss of intelligence." That is the National Aphasia Association's motto and tag line. It's an empowering nod to all the individuals who are living with this disorder of communication. Maybe it helps. But it doesn't cure all of the frustration and hard work that comes with having aphasia and surviving a stroke. I must say however, as someone who has sat across from so many individuals with aphasia and other communication issues, these "barriers" don't eliminate their ability to deliver some truly powerful and moving lessons.

Ram Dass is a famous contemporary spiritual leader who was at the height of his popularity in the 60's and 70's. He was(is) well loved by the "hippie" movement and spiritual seekers for his book Be Here Now and for helping to make Yoga and Hindu spirituality more accessible to Americans. In February 1997, Ram Dass had a left hemisphere stroke which left him with right sided weakness and expressive aphasia.

In 2001 he "starred" in a documentary which included his perspective on aging and his aphasia in addition to his life story. I watched the documentary recently and was on the edge of my seat! It was a beautiful illustration of  how Speech and Communication and Spirituality can be so interconnected (one of my favorite things to muse about).

The documentary opens with a clip of Ram Dass in 1969 speaking eloquently and esoterically about the discipline of the yogi to stay present through both physical/external and internal distractions. Then cuts to a more recent interview with him, gray haired and communicating with aphasia. From my perspective as an SLP, Ram Dass's aphasia is on the mild side (mild anomic aphasia to be exact), but his language skills are markedly different from pre-stroke, and immensely frustrating for such a high level communicator, no doubt. The movie was full of these juxtapositions: clips of Ram Dass pre-aphasia or people reading from his eloquent books and letters, followed by clips of current interviews or   speaking engagements. All equally moving and insightful.

Watching this film made me think about my own experiences talking with people with aphasia and the unconventional but effective way ideas are often shared. I have experienced that sometimes "odd" metaphors and word finding pauses, transparent facial expressions, and unspoken parts of an interaction can be even more powerful communication than fancy words and sentences.  Often these messages need little extra explanation. They stand alone. This is good news! It helps me to recognize that we can all be powerful communicators, no matter our real or perceived barriers to being fully expressed and to using our voice.

I had so many favorite moments in this film. Ram Dass working with his Speech Pathologist (of course I loved that). Ram Dass talking about wishing to be free from the aphasia, the paralysis, but also welcoming it as an "experiment of consciousness." A clip of Ram Dass ecstatically experiencing chanting and music. And Ram Dass delivering intensely moving guidance to a young woman who was seeking his counsel after a terrible tragedy in her life. He has aphasia in all of these moments, yes. But he was just as alive, loving, and powerful as ever. Beautiful.

You can watch Fierce Grace on NetFlix or on YouTube (here)

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